Quick Updates

I don’t have much time because we’re getting ready to go out for the day, but I wanted to write a quick post. I’m really bad at letting weeks go by in-between posts when I’m busy so though I’d just write a quick one this morning and then I’ll write more in a few days when I have more time. Work has been busy and we’ve had the pleasure of visitors for the past few weeks and more to come upcoming weeks! With so many of our family and friends scattered about the US and Canada, it’s always so wonderful to have them come down here for a visit. It helps that we have nice weather all year round :) My sister in-law was here for a week and a half at the beginning of the month, and now my parents are here from Canada. It was amazing to get up early and watch Team Canada win the Gold medal this morning with my parents. Way to go Team Canada!

Liebster Award Nomination

I’m humbled to announce that I received a nomination from My Lady Bits for the Liebster Award the other day. I plan on writing a separate post about this in a few days when I have more time, but just wanted to take a quick moment now to say a big thank you. I’m incredibly touched and honored to receive this acknowledgement from my fellow blogger. My Lady Bits has had her fair share of ups and downs in this heart wrenching journey and is still going through it. Her strength and courage to share her story is such an inspiration.

Preeclampsia Foundation News

I’m terribly behind on my Preeclampsia Foundation News. Here are some recent announcements from their Facebook page that I’d like to share:

The Preeclampsia Registry: A database that saves lives

Promise Walk - It’s that time of year again: YOU are needed to “Make Strides and Deliver Hope.” Register today at www.promisewalk.org!

Preeclampsia Doubles Women’s Stroke Risk - Happy Heart Day! To celebrate February as Heart Health Month, we are spreading the word about the increased risk of stroke and heart disease for women with a history of preeclampsia. We want to make sure that your heart is healthy for your loved ones as long as possible!

To read more updates from the Preeclampsia Foundation visit their website at www.preeclampsia.org or visit their Facebook page.

© Preeclampsia Foundation 2013 | www.preeclampsia.org

Let’s Help Bring Diana Home

Last but definitely not least, I read a post from Amber Under Construction this week that moved me deeply and made my heart ache, titled Let’s Help Bring Diana Home. She posted about another blogger’s post from Life and Love in the Petri Dish. It’s the story of one friend Mo who is trying to help her friend Suzanne who has been trying to adopt Diana from Kyrgyzstan since 2008. Unfortunately Kyrgyzstan international adoptions were put on hold and Diana has been left without a family for many years.  Suzanne has never given up on Diana and thankfully Kyrgyzstan has again re-opened their intercountry adoption program. However, Suzanne has already spend tens of thousands of dollars to bring Diana home and still needs more. She is trying to raise $10,000 to go back to Kyrgyzstan to finally be able to bring Diana home. Please read her story and consider making a donation. Even a few dollars will go along way to helping this family finally be together. Also, Mo from Life and Love in the Petri Dish will match all donations that are give from her blog readers, so if you donate, make sure to say, “Mo sent me”. I couldn’t stop crying when I read Mo’s story about her friend and was completely amazed by Suzanne’s story of not giving up on hope for this child, and what an incredible friend Mo is for trying to help Suzanne and Diana by matching all blog donations.

If you think you would like to donate, please see Mo’s story at Life and Love in the Petri Dish and follow the links there to make your donation. If we all give what we can, we really can help make this finally happen! If you cant make a financial contribution at this time, but still want to help, write about it on your blog or Facebook or your choice of social media. You can make a huge difference just by sharing this story with others.

Preeclampsia Foundation News

World Prematurity Day is November 17

Last Updated on Friday, November 15, 2013 Friday, November 15, 2013

The March of Dimes brings attention to prematurity with other organizations worldwide on World Prematurity Day. We partner with them to deliver information that impacts roughly 15 million babies worldwide—more than one in ten born each year. Preeclampsia is one of the leading causes of prematurity worldwide, accounting for approximately 15 percent of all premature births in the US alone. Please share this information, and help us make others more aware and supportive of our mission.

Here are links to some articles that will update you on the statistics, concerns, advances, action items, and reasons for hope.

© Preeclampsia Foundation 2013 | www.preeclampsia.org

To read it on the Preeclampsia Foundation website:
http://www.preeclampsia.org/the-news/3-newsflash/296-world-prematurity-day-is-november-17

My Special Holdon Necklace

Holdon_Necklace

A few weeks ago I was perusing Pinterest and came across a necklace similar to this on my home screen. The necklace was highlighted for me because I follow the Preeclampsia Foundation and I had pinned a logo that was on one of their boards that was designed by Melissa Muir, preeclampsia survivor and Jewelry Designer. The logo was created for the Preeclampsia Survivor T-shirts, that are sold to raise public awareness about preeclampsia. Melissa is a 3-time preeclampsia survivor and had created a special necklace in honor of her daughter Kelsi. Kelsi was born at 24 weeks gestation and only lived for a couple of days. The wonderful and magical world of Pinterest, highlighted this necklace for me because of my previous pin of the logo. Seeing the image of her necklace had an immediate affect on me and I simply had to have one in honor of my son, Holdon. This began my connection to this amazing artist and the discovery of my preeclampsia sister, as she called us. Given our bond through this terrible condition of pregnancy, and the way she immediately opened her heart to me and shared her story, I realized we really are preeclampsia sisters. Although, she had only created the one necklace for herself, she agreed to create one for me too. The heart shape of the pendant is the same heart in the Preeclampsia Survivor logo and it symbolizes that I am a preeclampsia survivor too. The stone is my Holdon’s birthstone.

This morning I discovered my beautiful necklace in my mailbox and it is even more beautiful in person!

To read Kelsi’s story: http://www.babiesonline.com/babies/k/kelsi2005/

To learn more about Melissa Muir, please visit her at:
www.melissamuir.com
www.kcjewelbox.com

 

The Preeclampsia Survivor Shirt

In Melissa Muir’s own words, “The heart was created to show the love we hold for our children. The swirl in the upper left portion of the heart is also meant to represent the Preeclampsia Foundation Logo. The sweet foot on the heart represents the impression made on each of us that have been affected by preeclampsia.”

The heart logo design was then taken by volunteer Tina Spangler, a graphic designer, and developed into the current preeclampsia survivor shirt.

Click to read more, Preeclampsia Survivor Shirts Raise Public Awareness

www.preeclampsia.org

Preeclampsia Foundation News

Educational Conference Brought Controversies to the Forefront

Preeclampsia is a complex disorder that often confounds even the most skilled clinicians, and there are very few postgraduate courses offered on this subject. One of the missions of the Preeclampsia Foundation is to fill this gap by facilitating healthcare provider education on the subject with the aim of improving health care practices. Almost every year since the inception of Saving Grace, the Foundation has sponsored a major continuing medical education event for healthcare providers in that region.

Click to read more… (www.preeclampsia.org)

Also check out:

The Preeclampsia Registry (www.preeclampsiaregistry.org)

The Preeclampsia Registry is a “Living Database” bringing together those affected, their family members, and researchers to advance knowledge and discover preventions and treatments for preeclampsia, HELLP syndrome, and related hypertensive disorders of pregnancy.

Preeclampsia Foundation Facebook Page

© Preeclampsia Foundation 2013 | www.preeclampsia.org

Preeclampsia Foundation News

2013 Vision Grant Recipients to Study the Underlying Mechanisms of Preeclampsia

$25,000 research grants will be presented to two preeclampsia research studies

Melbourne, FL – September 12, 2013 – The Preeclampsia Foundation announced today that Ana Sofia Teixeira de Cerdeira, MD of the Harvard Medical School and Mandy Bell, PhD, RN of the University of Pittsburgh School of Nursing are recipients of its 2013 Vision Grants. Vision Grants are awarded to the strongest scientific proposals recommended by the Foundation’s scientific review committee with a further review by a consumer advisory board. The Foundation’s Board of Directors renders the final decision based on those recommendations.

Preeclampsia is a major cause of maternal and fetal pregnancy related disease and death worldwide. Both recipients have the goal of better understanding the underlying mechanisms of the disease and translating their research findings to clinical application.

Study #1 is working on the immune mechanisms (NK cells and Tregs) of regulation of placentation in health and preeclampsia.

Study #2 is designed to clarify the role that soluble endoglin (sENG) plays in preeclampsia by investigating if differences in the genetic code of the endoglin gene and related genes account for increased sENG in women with preeclampsia.

Click here to read more… (www.preeclampsia.org)

© Preeclampsia Foundation 2013 | www.preeclampsia.org

Preeclampsia Foundation News

Screening Tests for Preeclampsia

Preeclampsia Foundation News – August 16, 2013

If there were a way to learn your risk of developing preeclampsia in the first trimester of your pregnancy, would you want to know?  What if that test result wasn’t 100% accurate?

We asked almost 1,000 women – some who had had preeclampsia and some who had not – these and other questions to better understand patient preferences around the need for screening (or prediction) tests. Eighty-eight percent of women with a history of preeclampsia agreed that an early test was important, even if it was imperfect. Even those without a history of preeclampsia – 74% – still agreed it would be important.

Click here to view more: Screening Tests for Preeclampsia (www.preeclampsia.org)

© Preeclampsia Foundation 2013 | www.preeclampsia.org

Preeclampsia Foundation Introduces Illustrated Education Tool

On May 7th, 2013, the Preeclampsia Foundation introduced a new education tool to inform expectant mothers about the life-threatening disorder of pregnancy. This is a must read for anyone who is trying to become pregnant or currently pregnant.

Preeclampsia Foundation Introduces Education Tool to Inform Expectant Mothers about Life-Threatening Disorder of Pregnancy

Illustrated preeclampsia symptoms tear pad now available, already adopted by California healthcare initiative

Melbourne, Fla. — May 7, 2013 /PRNewswire/ — The Preeclampsia Foundation today released the Illustrated Preeclampsia Symptoms Tear Pad, a patient education tool that was developed in collaboration with health services researchers at Northwestern University Feinberg School of Medicine in Chicago, Ill. The tool effectively informs pregnant women, even those with potentially poor literacy, about preeclampsia. Because preeclampsia is a disorder that can have grave consequences for a mother and her unborn baby, the goal is for the tool to offer information in a way that allows women to assimilate and retain knowledge related to preeclampsia, leading them to promptly seek medical attention should they have symptoms related to preeclampsia…

To read more… Click Here

or

Click Here to see Multimedia Version

© Preeclampsia Foundation 2013 | www.preeclampsia.org